The Stroup Kid For Kids Epilepsy Foundation, Inc. is a non-profit 501 (c) (3) organization with 100% of the money donated going to our projects. We are a volunteer run foundation with no operation costs. Thanks to YOU we have raised over $290,587 in 15 years with over $126,000 going to the Johns Hopkins Pediatric Epilepsy Center. Here are some of the projects we are funding via our Tri To Help and Addielicious Walk To Help events:
- Adelyn Stroup Lectureship Series
- Ketogenic Epilepsy Training DVD for China
- Metabolism based Therapy in Epilepsy
- IEP & Related Advocacy Services
- RX AM/PM Medicine Reminder
1) The Adelyn Stroup Lectureship series stared in 2007. This series invites an exciting physician-scientist new to the field of pediatric epilepsy to travel to Johns Hopkins to lecture to a group of reputable physicians, neurologists, residents and interns on a topic of their choice. This initiates ideas for the advancement of cures for epilepsy as it brings together awareness of what other institutions are doing to fight this disease.
2007 – Dr. Elizabeth Donner – Toronto Sick KidsResearch: Methods for language mapping in children with epilepsy. Evaluation of non-medical treatments for epilepsy in children, including the vagal nerve stimulator and ketogenic diet.
2008 – Dr. Kevin Ess – VanderbiltResearch in Ess’s laboratory is focused on deciphering the molecular mechanisms required for typical brain development and how disruptions of these processes lead to malformations of the cerebral cortex.
2009 – Dr. Elliot Sherr – UCSF Dr. Sherr directs a research group, the Brain Development Research Program, that studies the genetics and biology of autism and epilepsy, work funded by the National Institutes of Health and March of Dimes.
2010 – Dr. Miya Asato – Children’s Hospital of PittsburghDr. Asato’s current research centers on the effects of pediatric epilepsy on brain function. She is the associate program director of the Child Neurology residency program.
2011 – Dr. Renee Shellhaas – University of Michigan Dr. Shellhaa’s research focuses on fetal seizures and encephalopathy in newborn infants. She is studying conventional EEG and newer tools such as near-infrared spectroscopy and amplitude integrated EEG.
2012 – Dr. Annapurna Poduri – Children’s Hospital Boston Dr. Poduri directs the Epilepsy Genetics Program with one hand in the clinic as a pediatric epileptologists and the other hand in the laboratory on a mission to identify the genetic underpinnings of epilepsy.
2013 – Dr. Sudha Kessler – Children’s Hospital of Philadelphia Dr. Kessler is an Assistant Professor of Neurology Perelman School of Medicine at the University of Pennsylvania and is interested in the epileptic mechanisms of the human brain, specifically in children and the effect that transcranial magnetic stimulation has on those neural processes.
2014 – Dr. Eric Marsh – Children’s Hospital of Philadelphia Dr Eric Marsh is an Assistant Professor of Neurology at the Children’s Hospital of Philadelphia with primary research interest in understanding the relationship between interneuronal development and altered excitability that leads to epilepsy. This pattern is primarily seen in children with malformations of cortical development but also a number of emerging set of diseases called interneuronopathies.
2015 – Dr. Kelly Knupp – Children’s Hospital Colorado Dr. Knupp is an Assistant Professor of Pediatrics and Neurology at the Children’s Hospital of Colorado board certified in Clinical Neurophysiology and Neurology with Special Qualifications in Child Neurology. She gave a presentation on Infantile Spasms: Where have we been and where are we going?
2) Ketogenic Epilepsy Training DVD for China< 
We have crossed the seas! We decided to help fund a DVD project which is a cooperative effort between Healing Young Hearts (www.healingyounghearts.org) and Dr. Eric Kossoff of Johns Hopkins, the China Association against Epilepsy, and participating Chinese neurologists. This instructional DVD serves as a method for teaching Chinese neurologists about the Modified Atkins Diet for Seizures. It will be produced and distributed to Chinese neurologists for patients and families who will be using the Modified Atkins Diet for Seizures. To see the full DVD brochure click here.
3) Metabolism based Therapy in Epilepsy We are pleased to help fund Dr. Adam Hartman’s research on Metabolism Based Therapy. 20-30% of epileptic patients’ seizures are not controlled easily by medication. Therefore, Dr. Hartman’s laboratory is focused on discovering the anticonvulsant and disease-modifying mechanisms underlying several types of metabolism-based therapy for epilepsy, including the ketogenic diet which is the most widely used therapy (the high-fat, low carbohydrate diet). He is working at the Johns Hopkins Bloomberg School of Public Health with J. Marie Hardwick, PhD on this project
4) Advocacy Team: The Stroups have continue to navigate through the on-going ordeals of having a special needs child and would like to take that knowledge and experience to help other families navigate through their complex road map. We are putting an advocacy team in place that will be assigned to families based on individual needs. Contant us for more information.
5) RX AM/PM Medicine Reminder 
Many epilepsy patents need to take daliy medication. Sometinmes twice daliy. Remembering to take siezure medication cause be problopatic. This specially designed medicine reminder will hold seziure medication for the week. It has seven compartments in the top (white for AM medication) and seven compartments in the bottom (dark purpel for PM medication).