The Stroup Kid For Kids Epilepsy Foundation, Inc. is a non-profit 501 (c) (3) organization incorporated in 2007 that is dedicated to helping individuals affected by epilepsy / seizure disorders. We are a volunteer run foundation with no operation costs. Therefore, 100% of the money donated goes to our projects. These project include the Epilepsy Lectureship Series, IEP & Related Advocacy Services, Ketogenic Epilepsy Research, Metabolism based Therapy in Epilepsy, and Child Life Specialist sponsor for the Johns Hopkins Epilepsy Monitoring Unit. We also have a tablet/phone donation program called Tech To Help. Devices donated will be given to kids with epilepsy and autism.
Our main goals are to raise money to help prevent, control and cure epilepsy through education, advocacy, and research for exceptional treatments including surgery, diets, brain stimulation, and medications. We want to empower people with options when dealing with epilepsy and ensuring quality care for all. Our marque events for raising money and awareness is the Tri To Help Indoor Triathlon For Epilepsy and the Addielicious Walk To Help 1-Mile Family Fun Walk.
History
In 2004, Adelyn (Addie) Stroup had her first seizure. At the time her parents, Trent and Tina Stroup did not know what was happening to their first child of five months. After many weeks in the hospital and countless tests, Addie was diagnosed with Aicardi Syndrome, a rare disease affecting the brain which causes seizures and major developmental delays.
At this time, Aicardi is very rare with many diverse outcomes. Research is only at the beginning stages. The Stroup Family created this foundation in honor of their children for helping them and other children affected by Epilepsy. At this time, the main staple for raising awareness and charitable endeavors for epilepsy research is the Tri To Help© indoor triathlon event to benefit the research of Epilepsy at centers across the nation.
The Stroup Kids For Kids Epilepsy Foundation is funded primarily through individual and corporate donations from the general public.
Just The Facts
- Epilepsy include more than 3 million Americans of all ages are living with epilepsy.
- Epilepsy is the 3rd most common neurological disorder in the United States after Alzheimer’s and Strokes.
- You or I can develop epilepsy at any time in our lives. Strokes, Accidents causing brain injuries or just unknown reasons can cause seizures.
The Stroup Family hopes they can Tri To Help you and your family!